We started back to school after Easter vacation as planned. Then my son started having chest pains. He had low energy and we took over his chores so he could sleep. His appointment was Friday with the new pediatrician. He had pneumonia. No fever, No breathing problems. X-ray showed it. But the doctor also noticed some other things during my son’s exam. Have you ever heard of Marfan Syndrome? I had not. The doctor said we are entertaining diagnosis. Here is a web site about the syndrome http://www.kidshealth.org/parent/general/eyes/marfan.html
We have had several appointments and several more to go. I can not even began to tell how un-nerving it all is. My son seems pretty un ruffled by it all..